• Question: have you ever come across nf2

    Asked by anon-220381 to Shobhana, Rebecca, Rachel, Patrick, Matthew, Lorena, James, Emmanuelle, Deepak on 20 Jun 2019.
    • Photo: Rebecca Moon

      Rebecca Moon answered on 20 Jun 2019:

      Yes. I have looked after some children with NF2. I always struggle to remember the different characteristics or NF1 and NF2 though! Do you know someone with NF2?

    • Photo: Matthew Bareford

      Matthew Bareford answered on 20 Jun 2019:

      I have heard of it and know of it, but have never come across a case myself.

    • Photo: Shobhana Nagraj

      Shobhana Nagraj answered on 20 Jun 2019:

      Only in my medical school exam questions! This used to come up a lot in our exams and we had to talk about the benign (non-cancerous) growths affecting the nerve that allows you to hear on both sides (called bilateral acoustic neuromas). I have seen cases of NF1 but not NF2 outside of exams.

    • Photo: Deepak Chandrasekharan

      Deepak Chandrasekharan answered on 27 Jun 2019:

      Yep, we see a few people with it in our hearing/skullbase clinics as they have a non cancerous tumour that occurs on the nerve of hearing/balance on both sides.

      They are also very obliging and help a lot in medical school exams to help teach students about the condition.

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